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Sunday, March 29, 2009

Yeah Tawni!!

This morning as we were getting ready for church, I guess Miss Tawni felt adventerous so she crawled over to our stairs and I couldn't believe it, she got all the way up onto the first step, she sat there looked around "like I think I can do this" and so she did, she started climbing up our stairs!! We were all so happy, I even cried tears of joy! And we were only a little late to church, but it was all worth it☺

Wednesday, March 25, 2009

Eyes

We took Tawni to the optometrist today and I took it pretty well because I was expecting to what was going to happen. We knew that Tawni's right eye crossed in, but it was kind of hard to swallow that he had said it gotten worse, which we knew but is always hard to take hearing it out loud. So for awhile we will patch her left eye for an hour a day and see if that helps. She is also very nearsighted and will need glasses soon but just hate to do it at still a very young age. It's hard to take but Tawni just can not see very well, with being nearsighted, cross-eyed and having nystagmus. But you know what, it doesn't slow that baby down!

A few things going on around here is she actually pulled all the way up on the couch yesterday, I don't know that she realized what she did because she was to busy chasing Ty. Then a little bit later she pulled herself all the way up on our bottom step and laid there. It was like she was trying to figure out how to climb up the stairs like everyone else does.
Another thing going on, is my husband's ankle starting hurting on saturday and he thought he had just twisted it, sunday it felt a little better but was sore, and then monday it was really hurting, so much that I asked him to go to the dr that night but he didn't, he said he would go on tuesday. He called our dr to get an appointment and they couldn't see him til friday, so he went tuesday evening to a minor clinic and they determined he has a BLOOD CLOT in his ankle! I am so glad he didn't wait til friday. They gave him some medicine and today it is feeling better. Just so scary for him to have something so dangerous. Like the song says, My Life Would Suck Without Him!☺

Monday, March 23, 2009

Our night, or should I say early morning.

At 12:30 a.m., I heard it, you know "the cough" that croupy cough. So I checked in on Tawni, and thought honey I am too tired for an ER visit, so please just let it be a cough. So she settled down for about 45 minutes and then it started again and it came on with a vengeance, so at 1:30 I picked her up and tried to calm her down and knew it was time to go to the ER, so I yelled at my husband to help me so I could get dressed, and then 1 minute later, I was screaming at my husband, Tawni CAN'T BREATHE, CALL 911! And what seemed like forever, the fire truck and ambulance finally came. And to add we live in a culdasac, so I know my neighbors are just loving us with all the lights and sirens at 2:00 in the morning! So with a breathing treatment in the ambulance and one in the ER plus a dose of steroids, Tawni seems to be feeling better, just tired. We already made a trip to the pediatrician's office and they said she sounds great, so I am thankful :) It just amazes me how fast it comes on, she actually had a great day yesterday, playing outside and crawling up and down the step, and in out of the house, which is another big accomplishment for her!
Tori is also sick and will be going to the dr this afternoon. Ty seems ok his allergies are acting up, we didn't get him up last night but I am sure it woke him up, he is just so good about laying in his bed and going back to sleep but he seems really tired today so hopefully he will take a good nap!
Spring time is here and I was hoping all this sickness was behind us!

Saturday, March 21, 2009

Tawni and her lollipop!

video

Thursday, March 19, 2009

Sorry for the Attitude:(

Well this week has been Spring Break for the kids and it's gone by fast. Tori went to Fiesta Texas today and won't be back til late, I hope she has had a good time!
We've gotten haircuts and this week and even made a drs visit. Yes, Tawni had some kind of bug where she was running a 102 fever, but seems better now. Ok so on a couple of blogs I have read they are talking about if they would take the DS away from their child. And I can't say what I would do, just like if I could go back would I have found out that Tawni had DS and I don't know if I would, all I know is it was and is in God's hands and turned out the way it did for a reason. Things I don't like, is like at the drs. office there was a young mother with her baby and she kept smiling at Tawni and talking to her and all she kept telling me is "she is smart, she is so smart, I can tell she is", and then today we had a special breakfast at McDonald's and Tawni reached for Ty's cup and knocked it to the ground and a man picked it up and put it back on the table and said, "she knows what she wants and goes after it, that's good, that's good, she knows what she wants and does something about it", of course my husband says he thinks they were just trying to say comforting comments to me and I guess I take it the wrong way, just like when people smile at Tawni or say she is so cute, I think do they really think that or are they just saying that because she's the "cute Down's baby", just a bad attitude, right?? I had a good friend tell me the other day, I just need to face reality and accept her for who she is and quit comparing her and wishing for something else. God gave us her for a reason and I need to emabrace it!
Of course I do worry about what she will face in the future but I also worry about what my other kids will face in their future and their not so noticable delays. It's kind of like when people tell me Tawni is such a blessing and she is but so are my other 4 kids! I just wonder sometimes what will I tell her when she asks why she is different? I love Tawni, we all love Tawni so much!

Saturday, March 14, 2009

Am I doing Enough?

I know Tawni is doing good and doing things at her own pace, like this week she can put the balls in her ball toy the kind you put the balls in the top and then push the lever and they come down. We are so proud of her and just love it when she does something new! So today we had our DS playgroup and we had such a good time, I loved talking to parents I haven't met and then ones I have seen and finally had some time to talk more to them. Ty and Tori had a blast! Tawni just kind of hung out mostly in daddy's and mommy's arms and some time playing on the floor with the balls. But then I find myself comparing my baby to other babies and I get so mad at myself for doing that and then I find me questioning myself, "am I doing enough with her?", "should I be getting her MORE therapy?" I want nothing but the best for Tawni and want to do everything I can for her!

So on another note and yucky one at that.... poor Tawni has had the stinkiest gas!
And she hasn't ate anything different. And yesterday, well a little history first, Tawni has been on a laxative everyday until about a month ago and then she started going by herself without any help, but starting last week her poop has been so runny and so much that yesterday it ruined one of her outfits. Her appetite has even changed and the only thing I can figure is that she is teething. She has one tooth and the second one is on its way. Poor baby.

Sunday, March 8, 2009

Good Weekend!

We had a good weekend! Ty got a haircut and I must say he does look so handsome!
Tanner stayed the whole weekend and was such a blessing to be around!
Tori went with the youth group and helped paint a church over in east Austin!
And Miss Tawni has been able to pull up to things and get on her knees to play but today, she stood up on her legs! She still has to learn how to stand straight up but it won't take her long to figure it out, we were so proud of her!!!

We were out shopping this weekend and we ran into a lady and she told us, you're going to have fun with her talking about Tawni, and we said yes and agreed. She then told us she has a son 40 years old and he is one class away from getting his scuba diving license and is involved in so many activities and still keeps her on the go constantly. We thought that was cool and pray that Tawni will be the same way.
I still deal with the idea that Tawni will probably still be at home when she is older, and I still deal with feelings when people look at Tawni and know she has DS.

Good weekend, except for the time change which I am not a big fan of, I like the more time outside but I like my sleep too!

Friday, March 6, 2009

Hello Again!

Wow! I didn't realize it had been so long since I had blogged. Everything has been going pretty good, all of our therapy appointments have been good and Tawni is
just growing and growing. She even has a 2nd tooth coming in! I just didn't realize it would take her so long to get teeth. Since the weather has been so nice we have been playing outside and leaving our front door open so her big thing now is getting down the step to go outside and the even bigger thing that she tries and will do if she wants to is getting back up the step to come inside. Her and daddy have a new game, he gets on the floor with her and she crawls over his legs over and over. And if Ty is a willing participant he will let her crawl over him and they both just laugh and laugh.
Speaking of Ty he is growing so fast also! He comes up with new sentences everyday. We even have a new neighbor that has a little girl just a few months older than him and let me tell you he is in love....He gets so excited when his friend comes home and they can play. We also had some friends whose children had outgrown it gave us a swing set! So awesome to have, Ty loves to swing!!
Well the kids are in bed and it's time to spend some time with the hubby!