Merry Christmas!

Wow! Hard to believe it has already came and in a few hours it will be gone. What a fun day we had though. My mom came down on Christmas Eve, we went out for some yummy food and then looking at Christmas lights, while sipping on coffee, we had a good time! All the kids seem to really like all of their presents, even Tawni was just playing and playing and really seeming to have a great time!
Ty was so excited about his little motorcycle and after pushing it awhile he got the hang of actually riding it while pushing the button, and he really seems to love the firetruck bed but not enough to sleep in it...
Tawni seemed to love everything even Ty's toys:)
Tori loved her camera and TJ really liked the shoes, I was so glad I got the right ones, and Tanner was excited about his stereo. I got the bag I wanted and Gerald got the money to get the bible he wanted, it all turned out so good and exciting.

Now my little Miss Tawni is not feeling to well. Eary Christmas Eve morning about midnight, the croupy cough started, so at 12:30 a.m., it was a trip to the ER for a breathing treatment and some steriods. I am so frustrated with her getting this all the time and nothing I can do, and all the drs can say, "is well it's part of her down's", I am so tired of hearing that and also the phrase, "she will grow out of it." I have decided that down syndrome is just a wait and see game, or at least that's how I feel, and the Lord knows I am not good at waiting and seeing, think that's what He's trying to teach me??
So then after getting home at 3:00 a.m. to get a few hours of sleep, back up at 6:30 to get ready for her ENT appointment, (thank goodness my sweet husband let me take a good nap later that day). I guess the appointment went ok, the dr thinks her hearing is ok but she didn't exactly pass the hearing test, so we have to go back in a month to re-do the test, and if she doesn't pass then we will have to go in to the hospital to sedate her and do an in-depth hearing test. We are kind of hoping that we will have to do the in-depth test, with the test we can get an accurate account of what her hearing levels are and they will also be able to scope her throat to check it out since she gets the croup so much and because she has reflux so bad. Her spitting up is so frustrating for us, we should own stock in carpet cleaner from all of the spit up she does on the floor. And it seems like I can't get the drs to understand how bad she spits up and can someone or something help us??? and then I get those 2 phrases I just love so much (see above)....Ok, I will stop I am just venting... she is a precious angel and such a blessing to us, she can be so sick and having trouble breathing and still just be smiling so big...
Well it's off to the dr again tomorrow to check on her cough and her yucky nose, praying also I can get her into a stomach study before February...
Merry Christmas again!